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CDH HOPE Totebags - Giving hope to families of babies diagnosed with CDH on Facebook

How You Can Help

CHERUBS H.O.P.E Totebag Project
(Helping Other Parents Expecting)

How You Can Help:  Donate much needed items on our Wish List or hold a Cherubs Shower to collected items for this project.    Monetary donations are also greatly appreciated to cover the cost of postage to send totebags to families.   Currently, items and postage for each totebag is approximately $50.00 - thank goodness most of which is donated!

CHERUBS is 501(c)III Non-Profit Organization.   All donations are tax-deductible.

Congenital Diaphragmatic Hernia Baby Book

Congenital Diaphragmatic Hernia Baby Book

CHERUBS Congenital Diaphragmatic Hernia Baby Book is a must have book for all new and expectant CDH parents!    It is included in all CDH HOPE Totebags but is also available through our store or for free download.



Purchase the book through our Cafepress Site:

http://www.cafepress.com/cherubs.374494584

CDH Baby Cherub Book

by CHERUBS

$19.99

Availability: In Stock.

Product Number: 030-374494584
Genre: Children's Health
Paperback: 202 pages

  Description: Baby Book for children born with Congenital Diaphragmatic Hernia
Synopsis:

An atypical baby book with typical baby book contents such as handprints, photos, family tree and vaccination record - but also specialized sections for dealing with Congenital Diaphragmatic Hernia.

Product Details:

· Paperback: 202 pages
· Binding: Wire-O
· Publisher: CHERUBS (December 2009)
· Product Number: 030-374494584

OR download for free to print yourself at:

http://www.cdhsupport.org/CDHBabyBook.pdf

To give you an idea of what's included:

Table of Contents

Congenital Diaphragmatic Hernia

• What Is CDH?
• What are Fetal Interventions for CDH?
• Recent CDH Research News
• International CDH Study Group
• Medical Terms You Need To Know
• Questions & Facts About CDH
• ECMO
• Normal Values & Blood Gas Interpretation
• History of CDH
• CDH Treatments
• CDH Research Site

Getting Ready For Your Cherub

• Welcome To Holland
• Preparing For the Birth
• For Parents Who Are Expecting Children With CDH
• Our Pregnancy
• Journal Entries
• Baby Showers
• Advice To Be Prepared
• Questions To Ask The Doctor About Our Cherub
• Music To Listen To
• Sources of Financial Help
• Advice For Family and Friends
• Earning True Gift of Motherhood
• Sources of Information and Support
• CHERUBS State & International Representatives
• I Wish Someone Would Have Told Me!
• Designating A Cherub Liaison
• Our Cherub’s Blog

Our Cherub

• Our Family Tree
• Baby’s Birth Day
• Our Medical Team
• Cherub’s Medical History
• Important Medical Milestones
• Journal Entries
• Handprints & Footprints
• Mommy’s First Hold
• Daddy’s First Hold
• Hospital Visitors
• Cherub’s Firsts Photos
• Baby’s Milestones
• Journal Entries
• Baby’s Favorites
• Going Home!
• Our Home Support Team
• Medical Appointments Calendar
• Delayed Immunization Schedule
• Our Cherub’s Vaccination Record
• Journal Entries
• Feeding Diary
• Siblings
• Journal Entries

CHERUBS

• About CHERUBS
• Services Offered by CHERUBS
• Questions About CHERUBS
• History of CHERUBS
• CHERUBS 5 Funds For CDH Families
• CHERUBS Wish List
• How You Can Help CHERUBS
• Personalized Donation Sheet
• CHERUBS Resources for Families
• God’s Loan
• CHERUBS Mission
• Adopt A Hospital Program
• No One Knows
• Stories of Cherubs
• CDH Calendar
• Submitting Photos & Stories
• Updating Your Membership Form
• Using CHERUBS On-Line Calendar
• How To Volunteer
• 5 Easy Steps To Volunteer
• ACDHO

Congenital Diaphragmatic Hernia Awareness

• History of the CDH Awareness Ribbon
• CHERUBS Cafepress Store
• Simple Ways To Raise Awareness
• CDH Awareness Kits
• CDH Statistics
• CDH Awareness Bracelets
• CDH Awareness Ribbon Magnets & Buttons
• Order Form
• Mementos, Scrapbook Items, Records

If You Have To Say Good-Bye

• Advice To Parents Who Have To Say Good-Bye
• Funeral Home Information
• Now I Lay Me Down To Sleep
• Little Angels
• Chronic Sorrow Grief Process
• Brooks To Read
• Are You There?
• Why Not My Cherub?
• Journal Entries

Our Wish List of Items Needed:

CHERUBS H.O.P.E Totebag Project
(Helping Other Parents Expecting)

Our Wish List of Items Needed:   Below is a list of items that we currently include in our totebags.  Each totebag is different, dependent upon the items we have currently available.

• Disposable Cameras
• Baby Blankets (any material but wool)
• CDH Baby Books
• Button up newborn or preemie shirts
• Small or preemie pacifiers
  
• Travel packs of tissues
• Chapsticks
• Plaster Handprint and Footprint Kits
• Baby Booties
• Baby Hats
• Small bottles of hand santizer
• Small bottles of lotion
• Small picture frames (for the baby's hospital bed)
• Baby's first haircut holders
  
• Small teddy bears
• Gas Cards
• Restaurant gift certificates (national chains please)
• Coloring Pages - DONATED by the family of Caleb Cox.  Thank you!!!

Over 100 CDH Families Assisted!

CHERUBS H.O.P.E Totebag Project
(Helping Other Parents Expecting)

Families Assisted:   CHERUBS has sent HOPE Totebags to over 100 CDH families since September, 2009 thanks to the donations of CDH families and friends from around the world.   CHERUBS sends totebags only to CDH families because they are specificially designed for those affected by Congenital Diaphragmatic Hernia.

Our first totebag was hand delivered to the family of Andrew Hobbs (photo below).

CHERUBS expects to mail or deliver approximately 150 totebags each year to families affected by Congenital Diaphragmatic Hernia.

Delivery of the first CDH HOPE Totebag to the Hobbs family at Duke University Medical Center

Project Participants

CHERUBS H.O.P.E Totebag Project
(Helping Other Parents Expecting)

Project Participants:   All CDH families and friends can participate in this project to honor your cherub and to help other CDH famililes.  Each donated item is labeled with the donor's name and the name of the cherub honored.   No member is required to fill entire bags or hold events.  Simply donate what you can, when you can!  

Project History

CHERUBS H.O.P.E Totebag Project
(Helping Other Parents Expecting)

Beginning in 1997, CHERUBS sent expectant and new families New Member Packets.  These were just basic folders that included newsletters, our Parent Reference Guide, fundraising and awareness information, information about CDH and parent matches.   It was simple but it was the only source of information about CDH that were was at the time.   These packets were sent to 100's of families over the years.  We continued to send them out as long as we could afford to do so.  We now still offer the same information free on our web site. 

We always felt that expectant parents needed more but we couldn't find the funding.

Project Creation:  This project was started by a member in 2007 in memory of her son.   Items were collected for 2 years with 10 bags sent out to families.   Our main office took over this project in July, 2009 and bags were immediately sent out starting in September, 2009.

Over the summer of 2009, a new project name was voted on by members - CHERUBS H.O.P.E. (Helping Other Parents Expecting) Totebags.  

CHERUBS HOPE Totebags are a joint project by dozens of CDH families and friends.    It is not named for or run in honor or memory of one child;  our members donate items as a team, helping and donating items needed so that each bag is an outpouring of love from many CDH families.   This keeps our focus where it belongs - on the families that we are helping.

CHERUBS H.O.P.E Totebag Project - Project Mission

CHERUBS H.O.P.E Totebag Project
(Helping Other Parents Expecting)

Project Mission:   To assist families expecting babies born with Congenital Diaphragmatic Hernia by providing them with much needed free information and support items through a community project in which all CDH families can participate and honor their children while helping new families affected by Congenital Diaphragmatic Hernia.

Congenital Diaphragmatic Hernia (CDH) is a devastating birth defect that affects 1 in every 2500 babies.   CDH occurs when the diaphragm fails to fully form, allowing abdominal organs into the chest cavity and preventing lung growth.  The cause is not known.  

50% of babies diagnosed with CDH do not survive.   Of those that do survive, sometimes long hospitalizations and other issues occur.  It is incredibly important for CDH families to have accurate information of all the treatments for Congenital Diaphragmatic Hernia so that parents can make informed decisions for the babies' care.  Items included are a CDH Awareness Ribbon totebag, personal care items for baby and information for the parents and family.   Our CDH Baby Book is over 200 pages of valuable CDH information and advice.

Over 100 new and expectant CDH parents join CHERUBS each year.   This project was created for them, to help them through the first few weeks and months in dealing with Congenital Diaphragmatic Hernia.  Our totebags are put together by volunteers through donations.

CHERUBS H.O.P.E Totebag Project

CHERUBS H.O.P.E Totebag Project
(Helping Other Parents Expecting)

Delivery of the first CDH HOPE Totebag to the Hobbs family at Duke University Medical Center

CHERUBS H.O.P.E. (Helping Other Parents Expecting) Totebag Program assists families expecting babies born with Congenital Diaphragmatic Hernia by providing them with much needed free information and support items through a community project in which all CDH families can participate and honor their children while helping new families affected by Congenital Diaphragmatic Hernia.

Donated items are collected by our members, CDH families and friends and put together into totebags by volunteers.  Totebags are then mailed to families who are expecting babies born with CDH or who have newborns still hospitalized and battling Congenital Diaphragmatic Hernia.

Congenital Diaphragmatic Hernia (CDH) is a devastating birth defect that affects 1 in every 2500 babies.   CDH occurs when the diaphragm fails to fully form, allowing abdominal organs into the chest cavity and preventing lung growth.  The cause is not known.  

50% of babies diagnosed with CDH do not survive.   Of those that do survive, sometimes long hospitalizations and other issues occur.  It is incredibly important for CDH families to have accurate information of all the treatments for Congenital Diaphragmatic Hernia so that parents can make informed decisions for the babies' care.  Items included are a CDH Awareness Ribbon totebag, personal care items for baby and information for the parents and family.   Our CDH Baby Book is over 200 pages of valuable CDH information and advice.

Over 100 new and expectant CDH parents join CHERUBS each year.   This project was created for them, to help them through the first few weeks and months in dealing with Congenital Diaphragmatic Hernia. 

These bags will ONLY go to families affected by Congenital Diaphragmatic Hernia.   They will be sent out  to families in the United States as they join CHERUBS membership.

For more information on CDH and CHERUBS, you can visit our site at http://www.cdhsupport.org

If you would like to make a tax-deductible donation of items or money, you can mail it to:

CHERUBS
3650 Rogers Rd #290
Wake Forest, NC 27587